The first activity launches today, on World Sight Day: a new section on retinopathy of prematurity (ROP) on Neopedia, GFCNI’s global information platform for parents, which aims to raise awareness of ROP among families worldwide.
Stockholm, Sweden – 8 October 2026. ROP is an eye condition that can develop when a baby is born too early, before the blood vessels and nerve cells of the retina have finished growing. Babies born before 31 weeks of pregnancy, or weighing less than 1,250 grams, are at highest risk. ROP can sometimes resolve on its own, but when treatment is needed, finding it early gives a baby the best chance of healthy vision. That is why regular eye checks, in hospital and after discharge, matter so much.
Many parents first hear about ROP in the neonatal unit, at an already stressful time. In clear, non-technical language, the new Neopedia section explains what ROP is and which babies are most at risk, what happens during an eye examination, the role of the fatty acids DHA and ARA in the development of a baby’s eyes, and why follow-up eye appointments after discharge are important.
The content was reviewed by Professor Ann Hellström, Professor of Pediatric Ophthalmology at the Sahlgrenska Academy, University of Gothenburg. It is available in English and will be published in all Neopedia languages.
“For parents of a baby born too early, everything can feel overwhelming, and many first hear about retinopathy of prematurity in the neonatal unit, when there is already so much to take in. Through the ROP section at Neopedia, we hope to offer families clear, reassuring information, so they feel less alone and more confident in caring for their baby’s eyes, including regular checks after they go home,” said Dr Stefan Johansson, co-founder and Chief Medical Officer of Neobiomics.
“Every family of a preterm baby deserves reliable, understandable information. We are proud to start this collaboration with GFCNI, an organisation that puts parents’ voices at the centre. ROP is a natural first step: when parents learn about it early, they can ask the right questions and keep every follow-up appointment,” says Annika Wülfing, Strategic Medical Affairs Lead, Neobiomics.
Later in 2026, the collaboration continues with a GFCNI talk on the lived experience of ROP, from the perspective of parents and affected individuals, at a Neobiomics webinar on the 22nd of October.
The new section is available at www.neopedia.org under Pregnancy & Birth – Possible Complications – Eye https://www.neopedia.org/pregnancy-birth/complications/eye
Content about ROP on Neopedia was developed with the support of Neobiomics. GFCNI retains full editorial responsibility for all Neopedia content. The Neopedia platform is unconditionally supported by Chiesi.
About GFCNI and Neopedia
The Global Foundation for the Care of Newborn Infants (GFCNI) is the first global organization and network to unite patients, families, healthcare professionals, medical staff, and scientists from different disciplines, fields, and countries – all with the joint goal of advancing the health and quality of care for newborns and their families across the globe. We envision a future where every baby born receives the right care, at the right time, in the right place! For more information, please visit www.gfcni.org.
About Neobiomics
Neobiomics is dedicated to solving the unmet needs in neonatology, addressing major challenges for preterm infants. Founded in 2016, Neobiomics is a fast-growing company located at the Karolinska Institutet Science Park in Stockholm. As of today, Neobiomics has two products available on the market and are both developed exclusively for preterm physiology and NICU clinical routines.
About Neopedia
Neopedia is a multilingual information platform supporting families and caregivers of babies born preterm or sick. The platform empowers families with knowledge to better understand and advocate for their baby’s care and connects them with national and local support organisations. Created by GFCNI in collaboration with parent organisations and reviewed by experts worldwide, it provides reliable, accessible information on neonatal care, prematurity, and beyond.
Media contacts
Neobiomics AB: Annika Wülfing, annika.wuelfing@neobiomics.eu, +49 15228618964
Neobiomics AB
Karolinska Institutet Science Park
Nobels väg 16
171 65 Solna
Sweden
www.neobiomics.eu